Reflections on being human: Part 1
Do we still matter if our capacity to solve problems and create gone? What does it mean to be human when we lose our minds? I think about these…
Behavioral Changes
Stories that provide more detail on the behavioral changes we experienced as Robert’s disease progressed. The symptoms of FTD are remarkably consistent across people, but how any one person’s behavior changes varies a great deal based on their culture, experiences, and life circumstances.
Behavioral Challenges: Sharing the word of God, part 3
I lay awake at night contemplating where we might move that would be safer. If we didn’t live near a school would that solve the problem…
Behavioral Challenges: Sharing the word of God, part 2
Adults are not allowed on the high school campus without signing in, but Robert didn’t believe this rule this applied to him. He’d worked for the school…
Behavioral Challenges: Sharing the word of God, part 1
I worked hybrid before it was a thing. Having this flexibility was critical to managing the day-to-day demands of Robert’s disease. On a given day…