Behavioral Challenges: Sharing the word of God, part 3
I lay awake at night contemplating where we might move that would be safer. If we didn’t live near a school would that solve the problem…
FTD Symptoms
Stories that explore how the symptoms of FTD manifest and how they are experienced by family members.
Behavioral Challenges: Sharing the word of God, part 2
Adults are not allowed on the high school campus without signing in, but Robert didn’t believe this rule this applied to him. He’d worked for the school…
Behavioral Challenges: Sharing the word of God, part 1
I worked hybrid before it was a thing. Having this flexibility was critical to managing the day-to-day demands of Robert’s disease. On a given day…
What FTD Looks Like: Part 3 – Counting and mimicking
I was so flustered. I finished paying for our groceries, mumbled an apology to the harried mom, “I’m so sorry. My husband has dementia,” and scuttled out…
What FTD Looks Like: Part 2 – Candy and disinhibition
Robert did things that he would never have done had his brain been intact. He was “disinhibited,” which made for an exciting romp around town. For him…
What FTD Looks Like: Part 1 – Apathy sets in
In 2017, two years after the “Europe incidents,” Robert stopped listening to the people around him and was often mentally absent, off on a tangent in his mind…
Our Journey: Part 2 – Signs of trouble
We first noticed Robert’s judgment falter in 2015 during a trip to Europe with our then-15-year-old son, Jackson. My husband has always had a great…